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This page is devoted to any breaking news that affects the XXY/Klinefelter syndrome community. Please contact 47xxyorg@gmail.com with any information that you think belongs on this page.
Verified every outside link on the site. They all work as of today, July 1, 2010.
Added both a Chinese and Spanish translation of the Robert Bock paper Understanding Klinefelter Syndrome,: A Guide for XXY Males and their Families. Written by: Robert Bock, Office of Research Reporting, NICHD. NIH Pub. No. 93-3202 August 1993. Information is old but, in general, still an excellent resource. Please check the International page for more details. (added June 1, 2010)
Also, details of the 2010 U.S. National Conference on X and Y Chromosome Variations, a joint project of AAKSIS and KS&A, have been announced. (added June 1, 2010)
After a long hiatus from this site that included relocation, a new job and marriage I am back and working again. This would have occurred much sooner, but because of a number of odd happenings, such as overwriting the boot sector of my hard drive, misplacing the passwords to my server space, and finally having the administrator of the site stop paying for the server space and having the site disappear along with the domain name . . . So here it is again, but as 47XXY.com. As of today all the links are current and every page is working. Any problems please contact me at 47xxyorg@gmail.com
Thanks. (January 20, 2008)
For the most timely calender of events please visit Stefan's Klinefelter Syndrome Support Group Home Page.
Celebrate Intersex Awareness Day: October 26, 2004.
Intersex Awareness Day intends to create a "day of action" similar to
Take Back the Night, National Coming Out Day, or International Women's
Day. (added September 10, 2004)
Association francophone Klinefelter, a site devoted to francophone XXYs and their families. (added September 2, 2004)
A Spanish translation of the complete "Understanding Klinefelter
Syndrome: A Guide for XXY Males and Their Families," by Robert Bock.
ENTENDIENDO SÍNDROME DE KLINEFELTER UNA GUÍA PARA MASCULINOS XXY Y SUS FAMILIAS (added April 30, 2002)
New XXY/Klinefelter syndrome site with information especially for the state of Ohio, U.S.A. (added April 24, 2002)
The International Society of Psychiatric Genetics at NYU School of Medicine is beginning a 47XXY study. (added April 16, 2002)
Compiled a helpful Guide to choosing a doctor. (added December 23, 2001)
Low testosterone levels connected to possible higher incidence of Alzheimer's Disease. (added Oct. 8, 2001)
The Winter 2001 Klinefelter's Syndrome Support Group: Victoria (KSSG/V) newsletter is available for download here in PDF format. The file is approximately 64k. (added Sept. 22, 2001)
Letter from Mats Svensson published by "Svenska Psykiatriska
Föreningen" (The Swedish Psychiatric association) in their publication
"Svensk Psykiatri" (Swedish Psychiatry), Årgång (volume) XXV nr 3/01.
The letter describes how and why psychiatric caregivers are neglecting
XXY/Klinefelter patients especially in regards to their need for
testosterone treatment and what T does for us. (added Sept. 22,
2001)
Problem with Androgel?. Please read this report.
Brain morphology in Klinefelter syndrome: extra X chromosome and testosterone supplementation. Abstract from Neurology 2000 Jun 27;54(12):2218-23.
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This page first created:
May 24, 1999
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